It Started With a Eulogy

It started with a eulogy, as things never start. I listened as my husband spoke about his stepdad. I listened as his daughter spoke about her father. I remember the words that came to me and filled the pages as I wrote about my father-in-law. The same theme resonated: our greatest admiration and adoration of him was his commitment to his family. He gave love to his family, to his friends, to his community with the greatest generosity. It was about his loyalty. It was about his steady support and “I’ll be there for you no matter what” way of living. It was that he would offer you a roof over your head if you needed one, better yet, he would build one for you. And as I wept alone and wept publically at this great man we have lost, I also came to an eye-opening conclusion.

When we honor one another at the biggest events of our lives–weddings, anniversaries, birthdays, baby showers, and yes, even funerals, we honor the person. We honor their character, their connection to us, how they love us, how they fill our lives, whether they make us laugh, whether they challenge us, whether they support us, whether they take care of us. We honor them through our memories that have brought us closer and how they make us feel. We may touch on their accomplishments, their accolades; we may be impressed by what they have done in their lifetime, but this is not why we love them. This is not what they mean to us. To us, they are not a walking resume of achievements, but the soul that beats and fills our lives in whichever unique way that might be.

This has opened my eyes. So much of my life has been about striving. Striving to achieve. To get good grades. To reach my career goals. To always be in the top percentiles. It has always been about the climb, the achievements. I have sought the tangible accolades of degrees, position titles, awards, to prove myself and my worth.

Somewhere along this climb, I stopped myself. I thought about where I was going in this lifetime and why. I made a vow to myself that once I got to my goal of where I wanted to be with my career, it was time to change the course of how I dedicated my time and energy. It would be time to devote myself to maintaining my career goals, and shift my efforts towards what was truly my greatest aspiration and passion. And that is to be a mom, wife, and the greatest center force of my family. A close second to this is to be a loyal and present friend in the lives of those I love like family.

This was no easy shift. Why couldn’t I do it all? All those years in college and medical school, I had been told, “You can do it all. You can have it all. You can have success in your career and you can have success in your family.” I believed it. I believed every word. But as reality has shown me, when you dive into something such as a demanding career, you better give it your all to be the best. And when you give your all to one thing, where is the rest of you to give to “doing it all”? You may have a family, but you also have the support that becomes more and more essential to “having it all.” A supportive husband, supportive parents, a supportive care provider by your side, partnering in this raising of a family. These extensions of you become more dominant, they become a greater and greater force in those aspects of your life that need supporting, until you become the supporting role behind the real presence. And is that okay? Of course it is okay. Every family is a blended family of different pillars, different roles; that is how we have successful, dominating career oriented females and males in our society that we so greatly admire.

For me, this just couldn’t be the story of my life. I had to take a step back. I had to think about the repercussions of saying yes to this committee, to the added honor of accepting a promotion, writing a book chapter for a medical textbook, or a position of more responsibility. When you say yes to something, you are taking away from something. There is not an infinite amount of you to give.

This was tough for me at first, and if I am being honest, it is still something I struggle with to this day. Being entrenched in an environment that encourages you to strive for more, to reach higher, to produce greater things, to ultimately be better in your career and dedicate yourself to the pursuit of excelling, this is what I defined as success. Career success was life success. Life success was the sum of all your achievements. As I watched friends continue down that path, I felt pangs of envy, of resentment towards myself. Why aren’t you doing what they are doing? You could do that too you know. Are you lazy? Are you not good enough? Why are you giving up?

These questions haunted me heavily for years, and at times, still float to the surface and taunt me. But somewhere along the line, I acknowledged what I have known is the core of who I am. What matters to me above all else is not my career, but my family. My husband. My kids. They are my everything. My friends. Devoting my life to being present for them is a very conscious and very active decision I have made. By not “having it all”, I have intentionally created space and time to let my family know that they are what matters. Whether it be by making home-cooked meals, being home to pick the kids up from school and hear about their day, deciding to set up for a surprise, spontaneous fort-making extravaganza after school, baking zucchini bread for lazy weekend morning brunches, bringing homemade cupcakes to my husband’s office, or bringing a home-cooked meal to a friend’s family at her time of need, these are the things that matter.

This is my success story and I define success as prioritizing the people that matter most to me. Being involved in two PTO’s, managing my kids’ hockey team, these are the commitments that I invest in, because by investing in these things, I am showing my kids that they matter. That they matter to me more than any hospital committee or council I could be on.

This is not to say that I believe the opposite is true.  If your path is to to pursue that high-powered career, this certainly does not mean you are any less dedicated to your kids and certainly means nothing about how much you love your kids.  You make the ends meet the way it works for your family, showing them the importance of work ethic and showing them the tremendous value of commitment to your career and your life passions.

I do recognize that when I actively say yes to one activity, I passively agree to take time away from another. I therefore choose my career-oriented responsibilities with greater scrutiny. And the things I can most easily take away from are the ones with the smallest voices, that may not even realize their needs, and those are from my children and even from my husband. They are the ones that won’t provide me with another title to add to my resume, but it is these intangibles that I find my greatest responsibilities.

I won’t lie, some days still get me down and are hard. Surrounded by the high-functioning overachievers that define success that very way I had for so many years when I was achieving right along side them, I can see it in their eyes–they know they are leaving me in the dust. That my success story is a fading one. I have come to realize, this is far from the case. My success story is a blazing one.

My worth is defined by my intentional presence in the life and lives that matters to me most. This may sound morbid, but when those that love me sit down to write my eulogy, I want it to be about my fierce dedication to loving them, about my love and pride for the family my husband and I raised, and how devoted I was to always being present and there for them.

I have sought to re-define life success. Career success is not synonymous with life success. Career success is only a small fraction of what truly matters. My priorities are in order, and I can proudly say, my husband, my kids, my family and friends, will always be my greatest definition of success.

Dear Byron

What I’ll remember most is this uncanny relationship you built with your two-year-old granddaughter. I’ll remember how she would run to you, her full head of flouncy blonde hair, whipping behind her and collapse across your legs, burying her flushed, chubby cheeks in her hands and head into your lap. You were her safety. You were her rock.  
That two-year-old. She is a smart one. Because that’s how we all felt. You were our safety. You were our rock. We all buried our heads in your lap in our own ways. For me, it was knowing every time we had a crisis with the kids–this kid had a fever and needed to be picked up from school when both Joe and I were working, that kid was vomiting and couldn’t go to school today, or someone needed to stay at our house because Joe was suddenly going out of town and I was working overnight, or we simply needed a night out–you were there. Drop everything. No questions asked. I would look at you with desperate appreciation, and you would look back at me firmly, “that’s why we’re here. Stay out longer. You guys need the time.” And I would sigh and breathe and want to cry, knowing you were there to lean on, time and time again, letting me know that being there for us was all you wanted in return.  
What I loved most of all, was that there was no questioning that your number one priority was always family. And most of all, your wife–the love of your life. At the core of it all, you lived your life to love your wife and family and to protect and take care of us all. Every ounce of everything you were went into taking care of us. I remember how when you became too weak to walk across a soccer field, you would drive your wife to her grandkids’ soccer practice and wait for her in the car. I’ll remember how you would rather be out of breath carrying bags than consider having someone else carry the burden. I’ll remember how you shooed me away from washing the dishes every time you saw my shoulders slump in exhaustion after a long day. I’ll remember how you acknowledged what an amazing dad my husband is for stopping what he was doing to help our son build a lego set he was struggling with. I’ll remember how every time without fail, you would put down your fork, and say, “My Doctor told me to stop eating when I was full”, with a wink and a nudge in my direction. I’ll remember how nothing lit you up the way talking about your kids coming to visit did, and how you were looking forward to walking around the hardware store with your son, checking out new gadgets, just like you two used to do. I’ll remember the afternoons we spent on the lake with you–always the driver of the boat–while the rest of us enjoyed a carefree summer day of sun, water balloon fights, and stops at the ice cream shop.  I’ll remember those pork chops you slow cooked over a bed of hot coals–your famous hot chops.  Oh, we’ll all remember your hot chops.  I’m so sorry if you never had Byron’s hot chops.  

You were never one to want a lot. Just your family. Just to feel useful and needed. Just to be able to provide. Just to see your family happy and comfortable. You spoke loudly with your actions what you seldom said with words: I am here for you. Always, no matter what, because this is how I love you–with everything I can offer.  
You have been the ultimate fixture in our lives. Always steady, always there, never wavering. We all leaned on you.  
Our two-year-old continues to ask, “Where is Abba-abba?” And I will continue to tell her, that you are right here in our hearts. Our permanent fixture.  
Byron, you are truly one-of-a-kind. We all miss you greatly. But you have emblazoned your love into each of our hearts.  
Thank you for being here for us, even in these days when you have gone.  
We will continue to love you the way you loved us–with everything we’ve got.  

Beyond The Final Breath

Republished at:  https://www.washingtonpost.com/national/health-science/we-didnt-save-his-life-but-we-didnt-disrespect-him-either/2017/02/03/74612afe-d1f6-11e6-9cb0-54ab630851e8_story.html?utm_term=.9e665c02ec43

Republished at:  http://www.kevinmd.com/blog/2016/12/didnt-save-life-better.html

“Well?  Did you save him?” “No. We did better than that.”

He came in pulseless. The machine performing chest compressions with the rhythmic thud, thwack, thump. His ribs heaving under the force of the compressor, keeping his heart artificially beating. The plastic tube secured in his airway forcing puffs of air to inflate his lungs.  His skin slightly purple-gray, on that narrow brink between life and death. His eyes like speckled round pieces of glass, with fixed pupils, staring nowhere.

Our team was assembled, prepared, ready. We worked deftly with experienced hands, our focus and determination fueled by adrenaline, a synchronized team, we worked side by side; this was our life to save and we were going to do everything.

But his glassy, fixed eyes spoke to me. As we regained a heartbeat, and we halted the chest compressions, and our adrenaline settled–here he lay, not out of the woods, but heart back from a standstill. His glassy eyes told me his heart was back, but his life of living was gone. The life that laughed, that smiled, that held his wife’s hand–there was no amount of life saving measures that could bring that part of him back.  We didn’t know how long ago he had stopped breathing. But it was long enough to have robbed him of his mind, his memory, of everything that made him that man his family loved.

His wife and only daughter arrived. I left him in my able teams’ hands and sat down with them. I looked them in the eyes. I told them the story of his final hour of life, from the perspective of his fighting, beating heart.

His heart was here with us, but his  brain had gone too long without oxygen before we could reach him. He would never walk out of this hospital. They listened to my words.  Words spinning and exploding beyond comprehension. They nodded their heads, as if to ask me to keep talking.  So long as I was talking, we didn’t have to move.  Tears were inevitable. It was so sudden. How could they be asked to make a decision of whether to continue with the resuscitation or to just let life walk its final march.

Yes, this was about them, but this was ultimately about him. What would he want? It is true it was sudden. It is true it is the toughest decision anyone will make.  But with the return of his heartbeat, the decision to continue resuscitation is as big, as active a decision as it is to stop all aggressive measures and let him be comfortable. These are both big decisions with big paths for us to travel down.  I needed them to understand that this wasn’t their decision to shoulder. It was their time to respect–in the most selfless of ways–the man they loved.  To step outside themselves, slip into his shoes and honor his wishes in the greatest way possible.  What would he have wanted if he saw himself in this moment?  Representing him in this way is a responsibility no one cares to bear, but this final act is the biggest, most giving way they could love and honor him.

His daughter immediately said, “oh, he would want none of this. He would want you to stop.”

They stood by his bedside. We withdrew all aggressive cares. We turned off the beeping monitors, we stopped artificially putting oxygen in his lungs, we turned off all pumps, we covered him with warm blankets, we let him be comfortable with his wife holding his hand for his final minutes, and his daughter stroking his hair.

And that’s how he left us.

Did we save his life?  No we did not.  Not today.  We did better than that. We upheld our promise to continue to respect his wishes beyond his final breath.

Broken Oven, Glory to You

Also published at:  http://www.scarymommy.com/being-busy-not-badge-honor/

Four weeks ago, in the midst of a baking/cooking frenzy, my oven took its final breath and puttered out. With zucchini bread batter mixed and poured, I stared at it, wild eyed with that blood vessel menacingly popping out of my right temple. With flour highlights in my hair and batter splatters on my shirt and yoga pants, I had a few words with my oven.

The next day, the repair guys were out, and let us know that it was the central circuit board that needed repair. As luck always has it, they no longer made the parts to repair it; however, they said they could certainly send it to the manufacturer for a “small” gob of money to have it repaired. Or, we could spend the large gobs of money to replace the entire oven. Yep, I’d love to send it in to the manufacturer, I replied, as if there was much of a decision to be made. So they removed it, and on their way out the door, explained it would take two weeks and I would be without an oven, oh, and without my stove as well. Huh? What the what??? The nice repair guy grinned sheepishly, “well, there have got to be a lot of great take out options around here, right?” He zipped up his jacket, grabbed the signed paperwork and scrambled to his van, keeping one eye on that crazed vein in my right temple that was slowly starting to declare itself.

No stove or oven for two weeks???? Oh boy. I checked the freezer. Emergency corn dogs and dinosaur nuggets and microwaveable-bagged veggies to save the day. I wish I had some inspirational MacGyver-meets-Martha-Stewart story of how I used chicken wire to make a stove top with flint and kindle or how I made adorable tea party finger foods or how I did the sensible thing and went out and bought a temporary, portable stove-top, but God no. That never happened. The repair guy was right. There has been a lot of take out, and a lot of microwaved, processed foods these last few weeks. And you know what? I liked it. No, no. I didn’t like it, I loved it. I love my microwave. I am one with my microwave. There. I said it.

Since having children, I have felt this great responsibility to feed them healthy, well-balanced meals. Foods that make me feel good about what I am putting in their little, rapidly growing and developing little bodies. They have been hearty-vegetable-eaters, fruit-devouring-monsters, home-cooked-meal-lovers. They have a sweet tooth for home-made healthy baked goods. All this feels so good to be able to provide this for my family, some weeks I am better than others, but in these last two weeks . . . turned three weeks without a stove, I have come to a realization that I was too busy to notice before.

In trying to keep up with my career-family balance, I have constantly felt over-stretched, over-tired, and overwhelmed. I remember leaving a late shift at work, and one of my beloved nurses telling me, as she realized that with my husband out of town, I still had to go home and pack lunches for my kids and had to get up early the next morning to take them to school, “You have to let it go.   Just let it go.” And I looked at her with that same bewildered“HOW DID MY OVEN JUST BREAK” look, but too tired to ask further, just nodded, smiled and kept on walking out the door.

But now. Now I get it. See, the breaking of my beloved, necessary stove and oven has shown me something I’m not quite sure I could have seen myself. That in taking this break from the often insurmountable task of meal preparation and everything that goes into it for my family, I have allowed something to go and it has allowed me to breathe. Those extra hours a day that have fallen into my lap are glorious. They are hours I can spend on something productive or spend on nothing at all but my couch, a cup of coffee and HGTV. They are hours I can call a friend and ask, “How are you?” Those extra hours have lifted a weight, a responsibility, a stress, that gifts me energy and leaves me less tired, less cranky, less irritable. I had no idea that something as simple or as tough as preparing meals was doing this to me. Because, if I think about it, I tell myself, “Come on, how hard is it to make meals?” I don’t have to explain it to you if you are this person in your family. It is hard.

So, now I am thinking what else do I feel this way about? Every task, every responsibility we pile onto our shoulders is just one more “simple” thing, and we say to ourselves, come on, how hard could this be to add this one tiny thing? Well, one thing adds time, time adds energy, energy adds stress, stress leads to irritability . . . ahh, it is all making sense!!! What a simple concept. Where have I been???

I think I’ve been where all of you have been. We have been feeling that we are working mothers and fathers taking care of our family, of our home, of our communities. Sometimes, we lose sight of the value of our own limits and really, our own self. Boundaries blur until there are no boundaries, and we keep on keeping on. We estimate our capabilities, and like the old saying, our eyes are bigger than our stomachs, our undertakings underestimate what is needed from us to accomplish every minutiae of every day—and soon we are stretched too thin doing everything, but unable to do anything with the best version of ourselves.

So, let’s give ourselves a break. What we do is enough. What we don’t do is acceptable. Give what you have to the things that matter the most, and when there is not enough of you to go around, be okay with it. There is no glory in “I am so busy!” There is value to doing things with time, with your full attention and ability, choosing wisely what is important to you and having the energy to enjoy rest, relaxation, and time for calm. Let’s chisel away at this society of “busy”, and let the glory be with broken ovens and microwaves once in awhile.

These American Dreams

Whichever side you fall, you cannot deny that half of the country is hurting. That half of the country is in pain. In disbelief. In fear. Whichever side you fall on, you can acknowledge that there are people excited about this new era. About a leader like no other we have ever known. Whichever side you fall, there are two perspectives that deserve acknowledgement and respect. For after all is said and done, we are all in this together. Please.

My parents came to the United States of America with two suitcases of belongings as their entire inventory of wealth. My mother came to a country where she did not speak the language. My father came to a country and dove into a post-graduate program to receive his Ph.D. in mechanical engineering in a language he had just learned to speak. My mother–from a wealthy family–that wept and begrudgingly allowed her to come to America, but made it clear that this would be a journey she must make on her own.  She wrote home about seeing snow for the first time, about American grocery stores, but never spoke a word about the poorly insulated one room makeshift shed being the only place they could afford to live. She never wrote about the times when their landlord turned off their electricity because they were late on rent. My father, from a farming family in rural Taiwan that made ends meet by eating the over-supply of sweet potatoes generally reserved to feed their livestock. My father, who found his passion in the math and sciences, and dragged his desk out to the sole street light on the dirt road they lived on when it became dark to continue studying.

My father studied hard when he came into his graduate program. My brother was born within their first year of them being in America. To make ends meet, my mom took on odd jobs that she could do from home while taking care of my brother. She gratefully accepted any hand-me-downs to provide for my brother from other foreign graduate students as their kids outgrew clothes. To make ends meet, my mom kept a tight budget, allotting money for food and bare essentials.

My mom tells the story, with a calm and steady voice of when my brother was preschool age. She went to the store to buy milk, and she came short of the 19 cents it cost for his milk. She rummaged through her purse, in her pockets, and ultimately felt as if there was nowhere to hide, but to swallow that lump in her throat and nonchalantly say she would come back for it later.

She tells the story of when she was so excited that my brother had a friend come over for a play date that in the weeks following, she encouraged my brother to invite his friend back. After being met with silence on numerous urgings, my brother ultimately replied, “He said he couldn’t, because his mom said our house was not a real house.” She turned that heartbreak into strength, and vowed at that moment, that she and my father would put every ounce of their energy into providing for my brother and his siblings to come, so we would never feel less than or have the opportunity to feel humiliated in this way.

Slowly, but with unwavering strength, my parents did just that. They carved out a life for themselves. A 5-bedroom, 4-bathroom life in the suburbs of West Des Moines, Iowa. They became American citizens. They raised three children that fully identify as Americans with families of their own, fully entrenched in the communities that they serve.

My parents’ story is the story of one American dream. Immigrants that paved their own way through hard work and heart ache. That made an amazingly better life for their family and fought to provide the wealth of American opportunities within finger’s reach for their children.

But my parents’ story is only one story of one American dream. There is also the American dream of the little boy that grew up knowing he should like girls, but instead fell in love with the man of his dreams as an adult. There is also the American dream of the little girl who grew up with a single mother working three jobs who never got a free ride and wondered if her daydream to pursue college was just a far away fantasy. There is also the American dream of the African American boy who grew up in a middle class family, whose mom is on the PTO, and yet he is still being convicted of a crime he did not commit because he was at the wrong place at the wrong time with the wrong skin color. There is also the American dream of the boy who came from three generations of law enforcement who puts on that blue uniform for the first time knowing that he is carrying the great responsibility upheld by his family to serve and protect with pride and dignity. There is also the American dream of the boy who picks education over the violence on the streets he walks every day, who never feels the encouragement that his choices are the right choices. These are American dreams. These are the dreams we need to protect.

Whichever side you fall on, remember that our country is about heart, about hope, about fostering these American dreams. As we all breathe our next breath, let’s breathe together knowing we share this air, we share the land we live on, and we share this country.  Let’s respect and embrace one another with open minds with the ultimate goal to carry one another forward.  Let’s leave no one feeling marginalized or left behind. While some of our hearts are breaking and some of our hearts are feeling empowered, let’s fight hard to unite  when we need it most.

What This Win Means to Us

There is something about this Cubs win that is about so much more than sports.

When I met my father-in-law some 14 years ago, there were three things I quickly learned about him.  I learned that he has the best, hearty, deep-from-the-belly laugh. I learned that his greatest pride is his kids. I learned that he was a die-hard Cubs baseball fan.

The minute I stepped into his house, I felt I was home. He squeezed me by the shoulders, and he looked me in the eyes, and he yelled over to my then boyfriend, now husband, “Well, aren’t you lucky?” And the rest is history. I remember spending summer weekends at the lake with his teasing and affable banter. I remember big family holiday gatherings where he would always sneak time to sit right next to me, with his plate piled high with turkey, gravy, and Grandma’s famous potato salad, and he would say, “you having fun yet?” with that wink in his eye.

He didn’t have an easy life. There were obstacles that got in the way of life and family. He was a workaholic to a fault. But as life moved along, he woke up. He redefined his priorities, and he set out to be who deep down, he had always been, buried under those things that had led him astray. By the time I met him, all I knew was a man that loved his children and his family and a man that was wholeheartedly loved by my husband.

My husband gave the eulogy at his dad’s funeral. During the eulogy, he talked about his respect for his father. He was proud of what his father had overcome and who he had become. He was proud of how his father made amends and embraced loving his family as his greatest priority. His death left a hole in my husband’s heart that would take time to heal, but that would never completely mend. I am so thankful I met this great man in my husband’s life. I am so thankful we will always have memories of him infused in this family map we are weaving.

There have been so many times that we have felt his great void. My husband’s graduations from college and law school, our wedding day, the birth of his grandchildren, holidays, birthdays, family gatherings. In all the chaos of these wonderful celebrations, there has always been a moment’s pause, to recognize how much sweeter it would be to have him by our sides, laughing his deep-belly-laugh, and teasing his son about changing dirty diapers. I know if he saw who his children had become today, he would be bursting at the seams with pride.  We miss him.

One of my favorite stories is that of my father-in-law piling his dad and three young kids, including my husband, into the car one early Saturday morning, driving the three hours to Chicago to bring his family to their first Cubs babeball game at Wrigleyfield.  Then driving right back home after the game. When time is tight and money is tighter, you do what you can to create memories for your family and share the things you love. That is exactly what my father-in-law did.  He did it right. To this day, my husband cherishes that trip they took to the great Wrigleyfield and it remains one of the most magical places for us to visit. This summer when we took our own kids to Wrigleyfield for the first time, it was as if we were sharing a part of Grandpa Mark’s legacy with them.  It was as if he was there with us, sharing those Chicago dogs in a poppy seed bun, piled high with onions, mustard, green relish, tomatoes and a pickle spear.

My father-in-law was passionate about Cubs baseball, to say the least. To him, like so many, Cubs baseball is not just a sport. It is an undeniable, slightly crazed passion we high-five and howl over. It is putting all your life’s heaviness aside to cheer for America’s favorite pastime. It is a shared hope that brings us closer together. It is a place to belong. It is the heartbeat that unites us.

Cubs baseball is infused into the identity of my father-in-law and the family that gathered around him. His love for the Cubs has sparked and cultivated our love for the team, which we are now passing along to our kids. During this roller coaster of a history-making series, my father-in-law undoubtedly took a seat on the couch along side each of his children. He has brought us together, to celebrate the Cubs, because in celebrating the Cubs, we are celebrating his passion, his heart, and remembering his constant presence.  Every text that was fired between his kids as the Cubs scored a homerun, made a sick defensive play, won a game, was sent with the unspoken message, “wouldn’t Dad love this?”

We wish he could be here to experience this epic Win. Oh, you would love to hear his deep-belly-laugh in all its glory. You would feel his hands slap you on the back and love to watch him sweep his grandchildren off the ground with his big bear hugs.

This is more than a won baseball series. This is about the history and families of fans that have united behind their love for their team. Fans that remember their fathers and mothers, uncles and aunts, grandfathers and grandmothers that passed on this tradition to root, root, root for the Cubbies–win or lose. But this time, they won it all. And for all of us that are carrying on, generation after generation, this die-hard love for the Cubs, we are celebrating big, for us and those that we wished were right here along side of us.

Fly the W

About A Boy

8 years old. Blond hair, neatly cut. Fair skin with flushed cheeks. Curious, trusting, clear blue eyes. Rosy, red lips in a perfectly content, relaxed grin. Wearing a plain red cotton t-shirt and blue jeans with the elastic waist and Velcro sneakers. I meet you in your wheelchair. I asked your dad what was the best way to get you onto the hospital bed to examine you. He picked you up easily in a bear hug, and your lanky, skinny arms wrapped around him, as your tight, contracted legs held their bent position as he plopped you gingerly on the bed. I listened to your heart and lungs, I pressed on your soft tummy, I noted the pull-up you wore with Buzz Light Year printed on the front. You never took those calm, trusting eyes off of me. You never smiled, but your whole face smiled at me. You never spoke, but your whole being spoke to me.

This was maybe two weeks ago, but my visit with you still pops into my mind frequently. It’s unpredictable which patients stay with us. We see patient after patient, and some just settle into our hearts and mind, lingering in our thoughts, reminding us that after they leave our care, they are still here.

What I remember about you is how sweet and happy you are. How you didn’t have to say a thing to let me know you trusted me. You trusted your dad. You trusted this world that you live in. On this day when you weren’t feeling well, you still smiled with your whole face.

What I remember is how well cared for you are. Your styled hair. Your clean clothes and newly changed pull-up. Your new Velcro sneakers and socks without holes.

What I remember about you is how much you are like my own son. Your lanky arms, your lanky legs, your fair skin with flushed cheeks. Your big, curious eyes, trusting me.

You came in for nausea and vomiting.  While this is something that has plagued you in the past, this time, it was just a stomach bug rippling through your daycare.  Your dad relayed this in sighs of relief.  Because this was something common. This was something other kids were going through. This was a “just-like-everyone-else” problem and not a “just-unique-to-you” phenomenon.

See, there are milestones that you and your family have not experienced. Your first word. Your first steps. Your first laugh. But there are milestones that are like gold. Those first hugs. Those first nods of understanding and communication. The realization that you are taking it all in, and those eyes are your window to experiencing and memorizing this whole world around you.

I cannot begin to comprehend how hard this life is for you, for your parents, for the three brothers that came before you. I also cannot speak for the immense beauty and happiness in your life.  But the one thing that I do know is that you are loved. You are enriching and touching the lives of your family, of those like me that have had the honor of meeting you. This I have experienced first hand.  You are louder than you could ever be in your steadfast ways.

You didn’t have to say a word, but you have touched me. I see you the way I see my son. A wonderful boy that is filled with love and that is loved.

Life is hard. It is hard in different ways for different people. But it is these moments of strong, quiet beauty that keep it tender and keep it worth our hardest work.